Category Archives: Special Needs Caregiver

#CaptureYourGrief – Day #4

Light and Dark

CaptureYourGriefDay4

I chose to capture my light and dark image through a tunnel at the playground.  I found it fitting since Clara would be almost 7 she would likely be spending lots of time at one.  Seeing little girls climbing through the tunnels reminds me of my own crawling through my grief.  To this day dark tunnels are something I fear.  It isn’t until I can see light that I am able to feel my fears subside but just a little bit. I will skip those tunnels whenever possible.

As much as we wish for only light, when the light is gone there is only darkness.  I feel like there really isn’t a darkness but rather an absence of light.  Missing the light can leave us stumpling and falling.  We struggle for breath and balance.  We live in fear of the lack of light.

In grief we sometimes only see our lost child as the light.  We don’t know how we will ever see light again.  We stumble along our journey through grief.  We fall and fear and get stuck sometimes.  We wonder if only…  Is this normal?  How will I do this?  And in that darkness we find these tiny dots of light.

For so many of us we are attracted to the light.  We know we miss the light.  For some of us the light is a companion or a friendship.  It can be a kind word or an understanding heart.  For some it is faith and hope.  In some instances it is another child on the way.  These flickers of light only get stronger as we journey toward them.  Some of those lights last forever and some of them carry us to the next waiting light.

In my journey my light began when I started focusing on finding good in every day.  My light started small.  I was thankful for getting out of bed, for eating, for hugs.  Eventually I was thankful for the good memories, Clara’s life, and the people I met along my journey.

I was also one of those few who soon had a child on the way.  That light brought it’s own darkness through fears.  Each step of the way there were tiny flickers of hope that grew.  They are what gets us through each day.

It was through these shining rays that I realized how I felt was similar to others.  It turned on more lights until I realized I was holding the light in my hands again.  I can’t imagine my life without those people who were there for me.  I can only imagine I might still be stumbling in the dark, searching for hope and comfort.

In grief the lack of light can consume us.  We can easily drown in the depths of darkness if we let  it.  It is when we make the choice to walk toward the light that we find and experience hope and comfort.

Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God (2 Corinthians 1:3-4).
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Can You Feel Me When I think About You?

Today marks six years since I held Clara for the last time.  It also marks the first time that Clara’s entire life followed the same days of the week…like her birthday on a Wednesday, her passing being 2 days after Mother’s Day.  It is hard to imagine life without her and yet here we are living it.  Instead of having six years of memories I have three and a half months.  Sometimes the most vivid memories are not the “good” ones.  Each year as today approaches my thoughts are filled with memories of May 12, 2009 when I raced to the ER and held my breath for an hour while the doctors and nurses did everything they could to bring life back into her.  The afternoon where I held her earthly body for the last time.  The evening that I laid my baby’s body on the hospital gurney and walked away, leaving her behind in that empty room.  That night as we picked up the big boys from our daycare when we also left with an empty infant car seat and two boys asking where their sister was.  It is a day I wish I could forget and yet I don’t want to.  Each year I find the anticipation of this day is harder than the actual day itself.

All5MothersDay2015

As my family remembers year number six we do it in a place where Clara’s memorials are not close by.   A kind man listened to the story behind my blog and told me about a place in Iowa City that I might appreciate.  He was so right!  Along the river sits a statue of hope.  When we first got there I was sure of how I wanted to capture it through the lens of my camera, I knew what my hope was.  Instead I viewed something more heartwarming and thoughtful than I could have ever imagined.  The little ones were drawn toward holding the statue’s hands.  They kept taking and replacing the beads that were in her hands.  They took turns holding her hands like they were dancing.  I saw hope and love and a sense of calm.

HopeHoldingHands2015

Every May 12th I reflect upon the future and I am filled with hope.  Hope that her life was not meaningless.  Hope that her loss has brought my husband, my children, and myself closer to God.  Hope that there is always a future even if it isn’t here on earth.  Hope that I am one day closer to seeing her again.

HopeMothersDay2015

When I think about Miss Clara, can she feel it?  I like to think so, that is my hope.

HopeMomsDay2015

“The day which we fear as our last is but the birthday of eternity.”
L.A. Seneca

Mother's Day 2009

Mother’s Day 2009

Day 23 Mommy's Favorite

 

 

 

 

 

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Holding Hands

For I am the LORD, your God, who takes hold of your right hand and says to you, Do not fear; I will help you.  Isaiah 41:13

Most of us have cared for young children. Maybe you have cared for one with strong fears.  I can tell you from experience it can be tough for both the child and the parents.  Children naturally lean to us when they are fearful.  We have spent many days holding our children’s hands through blood draws, tests, surgeries, loss, or the anxiety of watching others suffer.  Each time they reach out their hand for reassurance that everything is going to be okay.  Often times they don’t want to let go and tears flow.  The grip of a young child in fear is one that pulls at the heart.  We want nothing more than to show them everything will be okay.  God wants to do the same for them and for us too.

As adults our fears are far more reaching that just our children’s health.  Many of us fear the ramifications of day to day decisions like moving, finances, jobs, stress, relationships, ect.  We need His help to overcome our own fears.  Just like our sweet children run to us, we should run to God.  But how many times do we really remember that He is there holding out His hand to us.  How many of us try to take our hand away and hold onto that fear?   We try to maintain control of a situation, thus holding onto the fear that goes with it.   That fear can leave us feeling alone, empty, and our life at a standstill.  It can blind us to the path God has in front of us.  All too often it causes us to focus on the bad instead of seeing any good in our situation.  When we hold onto fear, our children see that and they learn to do the same.

Chris and I have lived through the biggest fear of any parent.  Our daughter, Clara, passed away from SIDS in 2009.  Shortly after Clara’s passing we found out I was pregnant.  After a healthy pregnancy Lincoln was born with what was classified as a “cosmetic birth defect”.  Five months later we would learn differently.  As the doctor listed off issues they found on the MRI our heads spun and our hearts ached.  Nothing had prepared us for the fear that gripped us.  When our older boys came to us in fear of losing another sibling, we held their hands.  We questioned how we were to comfort them when we ourselves needed relief from fear?  We soon realized it was an opportunity to show our children how we rely on our Father for comfort from our fears just like they rely on us.

This week I challenge you to look at how you react when you are fearful.  Are you holding your Father’s hand like your children hold yours or do you pull it away? Are you taking opportunities to show your children that you seek God’s help with fears, just like they seek yours?  Take time to share a fear with your children and show them how you hold God’s hand.  Through facing fears together as a family you will see a change in your children as well.  They will learn to not only hold your hand but God’s hand too.  It is a gift that will forever change them.

When I am afraid, I will trust in you. In God, whose word I praise, in God I trust; I will not be afraid. Psalm 56:3

sunset

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Lincoln’s Lemonade

Lincoln has really taken a liking to lemonade.  In fact his favorite reason to visit the Ronald McDonald House is to drop off pop tabs and pick up a fresh can of lemonade.  I can’t help but look at him and think of our “Pink Lemonade”.  He is just a much a part of that as Clara.  His legacy is one we hold in the live aspect.  We hold him and see him overcome so much everyday. To see this little boy who is always smiling through it all is amazing.  He shows us just how many good things can be found in the tough times in our lives.

Today we went looking for girl scout cookies and his choice:  Lemonades!

Love this boy!

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